Improve information content and delivery to patient regarding when scheduling mammography

Purpose

To increase patient’s health literacy of their mammography procedure

Tag(s)

 

Panel

Patient Facing Panel
Define-AI ID 22110008

Originator

Patient Facing Panel
Lead David Liu

Panel Chair

Andrea Borondy Kitts

Panel Reviewers

Patient Facing Panel 

License

Creative Commons 4.0 
Status Published
                               

Clinical Implementation


Value Proposition


Patients who are well-informed about their medical diagnosis and medical treatment are foundational to a healthy patient-physician relationship. These patients are more likely to play an active role in improving their health while feeling empowered after a care episode in the hospital or clinic. More fruitful communications with the referrer and/or radiologist regarding specific patient concerns or questions are also possible if the patient is well-informed. To this end, it is necessary to provide the appropriate information to patients when scheduling their exam. Importantly, in this age of over-information, succinct information with the correct emphasis is a growing necessity especially in the field of medicine that is filled with jargon and complexity. AI technologies can uniquely assist in this goal because this task is repetitive, simple, personalizable, and easily implementable. 


Narrative(s)


A patient schedules her first screening mammography online, as recommended by her primary care physician. The patient wants to obtain more information about the procedure to better understand it and address some of her potential concerns about the procedure (radiation, pain, side effects, etc). During the scheduling process, there is a step where the AI will provide the mammography procedure information to the patient in layperson language.


Workflow Description


The patient will  input their relevant health data online to schedule an appointment for a mammogram. Information will include demographics and risk factors relevant to breast cancer and to the procedure. These may include breast density (if known), presence of implants, prior surgery to the area, prior radiation of the area, family history of breast cancer, personal history of cancer, age at menarche, parity and conditions that may require special accomdations for mammography e.g. limited mobility.  Using natural language processing (NLP) or other methods to parse online inputted data, the algorithm can identify key features of the patient that are relevant for the imaging test. The algorithm will output the  information to help the patient learn more about her upcoming brease imaging test. Outputs may include but are not limited to: information about the procedure (duration, pain present/absent, how common is this procedure, general description of steps to take), procedure risks/ common complaints (as relevant to patient’s inputted demographics. E.g. women with dense breasts are recommended to have additional imaging tests, and commonly asked questions and answers about this procedure. If the patient wants to receive further information, relevant links will be provided.  After the mammography procedure is completed, patients can be surveyed about the procedure, specifically regarding what additional information would have been helpful  to know prior to the procedure to help  the AI improve the  comprehensiveness and succinctness of information. . 


Considerations for Dataset Development


Procedure

mammography [MAM]

Anatomy

Breast density, breast implant status, history of prior surgery

Gender

[Male, Female, Transgender, Agender, other]

Biological sex

Male (46, XY), Female (46, XX), other

Risk factors

parity, estrogen use, menopausal status, menarche

Cancer history

personal cancer history, family history of breast cancer, family history of cancer

Prior radiation history

Prior history of radiation to chest wall, axillary lymph nodes and other thoracic locations

Chronic Diseases

rheumatoid arthritis, hypertension, diabetes, obesity, etc

Medications

Hormonal/anti-hormonal medications

Technical Specifications


Inputs

 

Patient procedure

Definition

Patient procedure

Data Type

Text


Patient age

Definition

Patient age

Data Type

Numeric



Patient sex at birth

Definition

patient sex at birth

Data Type

Categorical


Value Set

[male, female]


Patient self reported gender 

Definition

self reported gender

Data Type

text


BMI 

Definition

Height and weight

Data Type

text


Sex Interventions

Definition

Description of any sex transition interventions (e.g. implants)

Data Type

Text



Breast sensitivity 

Definition

breast sensitivity- patient self report

Data Type

Numeric


Breast density

Definition

breast density

Data Type

Numeric


Breast implants

Definition

breast implant status and description

Data Type

text


Patient anxiety 

Definition

patient anxiety about procedure- patient self report

Data Type

Numeric


Patient prior mammogram

Definition

Determine if patient first time having a mammogram. If yes, include BIRADS score.

Data Type

Categorical


Value Set

[yes, no]




Post-mammography survey

Definition

Ask patients what information about the procedure would you have liked to know?

Data Type

text



Primary Outputs


Description of procedure

Definition

description of the arrival/check-in process, description of getting ready for the exam (putting on hospital gown, taking off necklaces, place valuables will be stored), description of the exam itself (instruction from healthcare provider, procedure, potential minimal discomfort/compression during exam, positioning)


Data Type

Text and relevant images/voice-overs


Duration of procedure

Definition

anticipated duration of procedure

Data Type

Numeric

Value set

minutes


Procedure risks

Definition

summary of procedure risks

Data Type

Text

Value Set



Summary of Suggestions for Procedure Prep 

Definition

preparing for the procedure e.g. no deodorant or perfume, suggestions for reducing anxiety prior to and during the procedure, wearing a top that can be taken off leaving bottoms on vs wearing a one piece dress.

Data Type

Text


Videos of the mammography procedure

Definition

Have a short <1 minute video overviewing the mammography procedure if patients still want further clarification of the procedure

Data Type

Video link


List of most common complaints during the procedure

Definition

Based on the patient’s demographics and comorbidities, list out the most common complaints of the mammography procedure. For example, for obese patients, movement might be more difficult.

Data Type

Text


Images of the facility

Definition

Present images of the hospital, imaging department, the mammogram machine, and examples of mammography images

Data Type

Image


Additional links for more information about the procedure

Definition

Suggestions of common, trust-worthy links such as radiologyinfo.org, cancer.gov, cdc.gov, mayoclinic.org, etc. for patients to browse through if they still want more information

Data Type

Text


Future Development Ideas


Acquire more granular data on the patient’s current emotional state and understanding of the test, questions such as “How nervous are you for this upcoming intervention?” or “Do you feel you have a good grasp of your upcoming mammogram?” can be presented after the scheduling is confirmed. Answers to these questions can allow for more relevant and personalized answers generated from the algorithm.